Three Films, Three Conversations

Mary Lou Falcone is an internationally renowned publicist, author of the memoir I DIDN’T SEE IT COMING: Scenes of Love, Loss, and Lewy Body Dementia, and executive producer of the documentary Facing the Wind. Following the loss of her husband, artist Nicky Zann, to Lewy Body Dementia in 2020, she has become a national advocate for caregivers and LBD awareness, speaking at institutions including the Mayo Clinic, University of Michigan, and University of Pennsylvania.

For over fifty years, Falcone has been a leading figure in classical music public relations, guiding the careers of artists including Renée Fleming, Van Cliburn, and James Taylor, while working with institutions such as Carnegie Hall and the Vienna Philharmonic. A former faculty member at the Juilliard School, she currently serves on the board of the Lewy Body Dementia Resource Center and as a U.S. representative to the Global BHP BrainTrust.

Terry Caffery, RN, MS, NP is a lifelong Rochester resident.  One of the earliest NP’s in Rochester, she went on to get her Master’s in Mental Health Nursing.  Now retired, most of her career was devoted to providing care for high-risk obstetrical patients.   Much of her retirement was devoted to end of life care for her mother and mother-in-law.  She is now married to someone with Lewy Body Disease. 

 Keith N. Fargo, PhD, is Director of Scientific Initiatives at the Lewy Body Dementia Association, where he oversees major research programs including the LBDA Research Centers of Excellence, a network of 27 leading academic medical institutions advancing research, care, and clinical trials for Lewy body dementias.

Dr. Fargo earned his PhD in Neuroscience from Indiana University. Prior to joining LBDA, he held leadership roles at the Alzheimer’s Association, where he helped expand the Alzheimer’s Association International Conference (AAIC), ISTAART, and TrialMatch, and later served as Chief Scientific Officer at the CMT Research Foundation.

Larry Guttmacher is one of the founders of Reel Mind. He is an Emeritus Professor of Psychiatry and Medical Humanities at the University of Rochester. In past roles, he served as an Associate Dean in the Medical School, Director of Psychiatry Residency Education, and Clinical Director of the Rochester Psychiatric Center.

Dr. Guttmacher was recently diagnosed with Lewy Body Disease and has become increasingly involved in raising awareness and speaking publicly about living with the condition. He recently published an article in The Lancet titled Learning to Live with Lewy.

He is an active volunteer at St. Joseph’s Neighborhood Center, teaches medical students and psychiatry residents, and conducts asylum evaluations with the Rochester Human Rights Initiative. He continues to be amazed and delighted by the community that Reel Mind has developed over the years.